Kindle. On the strength of Natalie Serber's review in the New York Times, and also the name of the protagonist. Unfortunately there's more in her review than the book itself. The plot is entirely conventional: we start in a steady state of coping with a lifelong debilitation that almost immediately gets destabilized in the time-honored ways. Serber suggests this is a take on the whatever culture circa 2011, and also a variation on Ovid's myth of Daphne and Apollo; Katy Waldman's article at the New Yorker makes me think that went out in the press kit.
And what causes all of this? I was sixteen when Mom and I found Dr. Bell. I had questions. I asked and asked. "So, when are you getting your neurophysiology PhD?" he’d answer with a pedant’s sigh. "All you need to know: The human brain is the universe’s most implausible chemistry experiment."